- Cleft lip/palate and other correctable conditions can cause speech problems, eating problems, and social ostracization.
- Developing-world corrective surgery charities send volunteer surgeons overseas and/or fund local surgeons to correct conditions.
- We have not yet found a corrective surgery charity that we can confidently recommend. Our top-ranked charity in this area is ReSurge International (formerly Interplast).
How do charities help?
The charities we've seen generally send volunteer surgeons overseas, and/or train and fund local surgeons, to address a variety of conditions. Below we discuss what we know of these conditions, and how much it costs to correct them.
Cataracts
A cataract is a condition that can cause vision problems. Most of our information about the costs and effects of cataract surgery comes from
our review of the Aravind Eye Care System.
Aravind appears to perform surgeries for about $35 each, employing local surgeons in India (and recouping its costs by charging some - though not all - of its patients). From very limited information, its surgeries appear to significantly improve vision quality. Jamison et al. (2006) seems to estimate the costliness of these surgeries as much higher, at $183 per disability-adjusted life-year (DALY) averted. (If a $35 surgery resulted in a single year of blindness averted, it would be equivalent to about $58-64 per DALY averted since a year of blindness is defined as 0.55-.60 DALYs.; more on the
DALY metric.)
Cleft lip/palate
A split in the lip or the roof of the mouth (palate) can lead to an extreme facial deformity. If surgery and speech therapy are not available, a child may have problems with eating, speech, hearing, and increased risk of cavities, as well as facing the social consequences of a facial deformity.
Note that
people with cleft lips or palates often need more than a single surgery. In the United States, children receiving cleft lip and palate surgeries likely receive multiple surgeries by the time they are 16. In addition, they typically receive orthodontic care and speech therapy over a number of years. It appears that very little is known about the long-term impact of a single surgery in a developing nation without a comparable support system.
Our best information about the costs of developing-world cleft surgery comes from our 2007-2008 review of ReSurge International (formerly Interplast). We estimate that a surgical
mission (i.e., flying developed-world doctors overseas to perform procedures) can perform one cleft surgery for about every $1400 spent. The use of local surgeons can be significantly cheaper: a total cost - including administrative expenses - of about $400 per surgery, but this approach raises some additional concerns about quality and the use of limited skilled labor (discussed below).
A paper by ReSurge International's (formerly Interplast) Chief Medical Officer estimates that each surgery in this category is equivalent to 4.6 disability-adjusted life-years (DALYs) averted, which would imply that missions cost ~$300 per DALY averted and local operations cost ~$87. (More on the
DALY metric)
Obstetric fistula
Obstetric fistula is a term for a "hole between the mother's vagina and bladder ... or between the vagina and rectum ... or both" resulting in "leaking of urine or faeces or both." It appears that technical literature on this condition is relatively thin, perhaps because the condition is extremely rare outside of the developing world. A report published in the
Lancet on a specific type of obstetric fistula (vesicovaginal) implies that reconstructive surgery is possible, but is relatively complex and has a significant failure rate, and may leave women incontinent even after the hole is closed. The details of how surgery is performed appear not to be standardized, and variations may be important to the outcome.
We find fistula repair surgery to be a promising intervention in that it addresses a devastating problem, but we have found very little non-anecdotal information on it. We are not able to provide any reliable information on cost-effectiveness aside from an unsourced claim by the Campaign to End Fistula that "the average cost of fistula treatment —including surgery, post-operative care and rehabilitation support—is $300." It seems unlikely to us that fistula repair is less costly than cleft repair (which we estimate as costing significantly more than $300 per surgery, as discussed directly above), since fistula repair appears to be at least as complex.
Charities working to address obstetric fistula are engaged in a wide variety of activities including funding general hospitals and specialty fistula centers, training surgeons in fistula repair techniques, increasing public awareness of the problem, and funding research and technical publications to increase knowledge on the subject (see
below).
Other conditions
ReSurge International (formerly Interplast) is an example of a charity that addresses a variety of other conditions, including hand conditions and burn scars. Burn scar repair appears slightly, though not much, costlier than other surgeries; we are not able to estimate the costs of surgeries to repair hand conditions separately. We believe that the severity of burns and hand conditions and the impact of surgery varies extremely widely, though ReSurge International's (formerly Interplast) representative has stated to us that they are generally significantly debilitating.
What are the challenges of finding a great charity in this area?
Before supporting a developing world corrective surgery charity, we would need to have substantial information addressing the following concerns (details below):
- What is the bottleneck to more surgeries: money or skilled labor?
- How is quality assured?
- Is one surgery enough?
What is the bottleneck to more surgeries: money or skilled labor?
We believe that in many cases,
funding isn't the bottleneck to more surgeries - surgeons are. In addition to our general concern about diverting skilled labor within the developing world, we have some additional specific reasons for concern in this area:
- After a discussion of this problem with an ReSurge International (formerly Interplast) representative, we are concerned that surgical centers may often be overbooked and charitable funding of local surgeons may result in changes in which people (rather than how many people) are treated.
- Financial data from Smile Train, a large organization that focuses on utilizing developing-world surgeons (rather than on flying developed-world surgeons overseas), indicates that a large proportion of funds are regranted to other (mostly large) charities, raising the question of whether additional funds can be productively used for the core activity of supporting local surgeons.
- We are also concerned about possible distortive effects of fees paid to surgeons. For example, ReSurge International (formerly Interplast) states that a cleft palate surgery is more time-consuming than a cleft lip surgery, while the time to perform burn surgeries varies dramatically. (Note that a cleft palate is believed to have a higher effect on quality of life than a cleft lip). Flat fee-per-surgery arrangements may therefore result in surgeons shifting toward shorter, simpler surgeries.
- We are generally concerned that the model of paying developing-world surgeons to perform more surgeries may result in more revenue for surgeons or changes in whom they treat, but may not increase the supply of skilled labor and thus ultimately may not result in more surgeries.
- A similar problem may apply to missions (i.e., flying developed-world surgeons overseas). Missions rely on volunteer surgeons, without which they would likely be far more expensive than the numbers that are generally quoted (numbers that are fairly expensive as is).
Before recommending a charity that funds local surgeons, we would require a compelling answer to the question of
how more funds will translate to more surgeries - for example, credible data on surgeons eligible for funding but not receiving it because of limited available funds.
Similarly, before recommending a charity that conducts overseas trips, we would require information about available volunteer surgeons and trips that could be carried out if more funds were available.
Many charities put some effort into training local surgeons, but from what we've seen, such effort is generally a small part of their budgets and is not accompanied by long-term follow-up on whether surgeons are correctly and consistently applying what they've learned.
How is quality assured?
Charities that fly developed-world surgeons overseas may be putting them in highly unfamiliar environments with unusually difficult conditions. Charities that support developing-world surgeons are relying on people whose medical education may be very different from what is standard in the developed world. In either case, we find it very important that a charity share information about how the quality of surgeries is assessed and what the complication rate is.
In addition, charities that send money to developing-world surgeons should share information about how they ensure that these surgeons are not taking payment for surgeries that they've charged patients for separately, or otherwise violating guidelines. The evaluation materials we have seen raise significant concerns about how quality and compliance are ensured.
Is one surgery enough?
As discussed above, surgeries may require significant follow-up care. From what we've seen, there is relatively little information available about the long-term life impact of surgeries when unaccompanied by follow-up care.
This is a particularly strong concern for charities that fly developed-world surgeons overseas, rather than supporting local surgical capacity.
Charities we've examined
We have examined the following surgery-focused charities. We do not feel confident enough in any to strongly recommend them to donors overall, as we have seen little information to address the concerns above. We feel that Aravind and ReSurge International (formerly Interplast) stand above the others.
Note that we have been in contact with all six cleft, burn, and eye surgery charities listed below except for CURE International.
Charities focused on cleft, burn, and eye surgery
| Organization | Focus | Information we have to address questions above |
| ReSurge International (formerly Interplast) | Cleft lip and palate, burns | Number and types of surgeries performed; some quality control data |
| The Smile Train | Cleft lip and palate | None |
| CURE International | Cleft lip and palate | None |
| Aravind Eye Care | Eye surgery | Number and types of surgeries performed; significant quality control data |
| Fred Hollows Foundation | Eye surgery | Number and types of surgeries performed; no quality control data |
| ORBIS International | Eye surgery | Number and types of surgeries performed; no quality control data |
Charities focused on obstretric fistula repair
| Organization | Primarily Fistula? | What do they support? | Expenses | Our notes |
| Fistula Foundation (Website) | Yes | Grants to hospitals that provide fistula repair surgery. | $2,474,252 (2008) | Charity review |
| Worldwide Fistula Fund (Website) | Yes | Building specialized fistula centers in Africa | $406,735 (2008) | Charity review |
| Women's Dignity Project (Website) | Yes | Research and advocacy | $998,928 (2007) | Outside our scope (research and advocacy) |
| OperationOF (Website) | Yes | Treatment, psychological counseling, business training, microcredit | Unknown | No apparent track record |
| One by One (Website) | Yes | Advocacy and grants to support treatment | $480,274 (2009) | No evidence of quality control for grants |
| West Africa Fistula Center Foundation (Website) | Yes | Treatment, education aimed at prevention, and assistance with reintegration | $335,423 (2008) | Grants for direct services without evidence of quality control |
| UNFPA: End Fistula Campaign (Website) | No | Treatment, training doctors, and advocacy. | More than $25 million raised since 2003 | No evidence of quality control for grants |
| EngenderHealth (Website) | No | Treatment, training doctors, education aimed at prevention, and assistance with reintegration | $57,086,271 (2008) | Fistula is one of many activities; no evidence of quality control for grants |
| Bugando Medical Centre (Website) | No | Full-service hospital that performs obstetric fistula surgeries. | Not available | Fistula is one of many activities; no evidence of quality control. |
See also
this email exchange with a donor interested in supporting fistula correction.
Bottom line
We haven't yet found a charity focusing on surgery that we can confidently recommend. We believe the
Aravind Eye Care System is a standout organization, but as our review of Aravind states, it does not require donations to support its operations, as it is able to cover its costs by charging for some (not all) of the surgeries it performs.
For donors interested in improving health in the developing world broadly, we recommend our
top charities, which focus on non-surgical interventions. For donors committed to supporting corrective surgery, we recommend starting with ReSurge International (formerly Interplast), which we feel stands above surgery other charities for reasons outlined in our
review of ReSurge International (formerly Interplast). We also recommend asking the following questions:
For charities focusing on surgical missions (i.e., flying developed-world doctors overseas to perform procedures):
- Do you have volunteer surgeons available for unfunded trips? (i.e., are there trips that you could fund if you had more money, or is there a labor bottleneck?)
- Many surgeries require follow-up treatment (including additional surgeries). Do you have a way of providing these to patients?
- How do you assess whether surgeries are completed competently and appropriately? What process do you use to monitor this and can you share past results from this process?
- What is the rate of complications during and following surgery?
For charities focusing on funding local surgeons:
- How do you assess whether surgeons are performing additional surgeries that they would have not had the funding or motivation to perform otherwise?
- How do you assess whether surgeons are charging their patients for the surgeries you fund?
- How do you assess whether surgeries are completed competently and appropriately? What process do you use to monitor this and can you share past results from this process?
- What is the rate of complications during and following surgery?
For charities focusing on training local surgeons:
- Do you follow up with the surgeons you've trained to assess whether they are successfully applying their training?
- What information is available on the activities - and competence - of the surgeons you've trained?
- Where do surgeons work after completing training? Do they serve poor patients?
Sources
- Cleft Palate Foundation. About cleft lip and palate. http://www.cleftline.org/parents/about_cleft_lip_and_palate (accessed July 2, 2010). Archived by WebCite® at http://www.webcitation.org/5qvFllCO0.
- Corlew, Scott. 2007. An economic assessment of a surgical intervention program in developing countries. Unpublished draft.
- Corlew, Scott. ReSurge International (formerly Interplast) Chief Medical Officer. Phone conversation with GiveWell (DOC), June 2, 2009.
- CURE International. Programs. http://www.cureinternational.org.uk/site/c.khLOK1PELmF/b.4423709/k.DFE9/Programs.htm (accessed July 2, 2010). Archived by WebCite® at http://www.webcitation.org/5qvFm28DV.
- EngenderHealth. Annual report (2008) (PDF).
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- Grant, Kate. Fistula Foundation Executive Director. Phone conversation with GiveWell, July 21, 2009.
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